Dystonia Resources

Many organizations provide resources to people who have dystonia and to the loved ones who care for them. At the websites linked below you'll find helpful information, support, and the chance to get involved in various activities and causes.

Dystonia Medical Research Foundation (DMRF)
(312) 755-0198

Bachmann-Strauss Dystonia & Parkinson Foundation (BSDPF)
(212) 241-5614

Care4Dystonia

National Organization for Rare Disorders (NORD)
(203) 744-0100

Spasmodic Torticollis Dystonia (ST/Dystonia)
(262) 560-9534

The National Spasmodic Torticollis Association
(714) 378-9837

WE MOVE
(212) 875-8312

These websites are not managed, monitored, or endorsed by Medtronic. Medtronic makes no representation as to the information presented on these sites or their compliance with applicable laws and regulations.

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*Humanitarian Device: The effectiveness of this device for the treatment of dystonia has not been demonstrated.